Transplant

Kami is going to have to have a liver transplant. Good news is that my brother, Jeff, is a positive blood match for Kami. He is in Pittsburgh as we speak undergoing tests to confirm compatibility. Hopefully all the tests come back positive and he can donate part of his liver. BUT, she is on the transplant list just in case he isn't. BUT it would be better if he was. The recovery for both of them will be lengthy, and Kami will have to stay in Pittsburgh for a few months. BUMMER! The latest plan I have heard is that after she has recovered enough from her transplant, she will have to undergo 2 more rounds of chemo to "clean" things up and blast any other little cancer tid-bits left behind.

I don't know why I can't make this bigger, but you can see it bigger on the kashforkami facebook page. Check out her cupcake clip...no doubt her mommy made it for her.


Kami is going to go through a bunch of tests today that will later determine whether or not she has to go to Pittsburgh for a transplant or if she can stay in Hershey and have her liver repaired at the Hershey Medical Center.

I am sorry I don't have more info and more info more often. Things change so fast and things are never 100% conclusive until a bunch of tests are done. Even then, things seem to change pretty quick. For right now, she is hanging in there and waiting for more results. Everyone pray that she can be home for Christmas.

She's back from Pittsburgh!!!!!

She went through a wide variety of tests and talked with a gazillion different people. It was a stressful/busy couple of days for them.

Kami had to have surgery this morning to put a different type of port in her chest. That went well and right now she is getting ready for chemo round #4 later this afternoon.

Kami's grandma told me some good news a few minutes ago. The Alpha Fetal Protein count, the protein making up her tumor, was at 144,000 before she started chemo. Now, it's WAY down to around 1,000!

I got to hang out with Kami a little this weekend. It was great to see her feeling better. She was playing and laughing and crawling on the floor while she was chasing grandma and the other kids.
What an amazing little fighter.

Doesn't this make you feel happy!

She is in Pittsburgh right now getting tests done at the children's hospital.

We miss you Kami!

Here's a brief little conversation Lindsay had with her girls on the way to Pittsburgh yesterday:

me: we are going to pittsburgh.

Shannon: we are going to pixburgh.

Kamdyn: we are going to pittsbird.

anyway you put it, you are going somewhere!