Wednesday, October 27, 2010

After nearly a month in the hospital, she is coming home
TODAY!!!!!
Everyone pray that she stays healthy enough to stay home until her third chemo treatment!
YEAH!

Tuesday, October 26, 2010

This is how anyone, who knows Kami well, remembers her pre-chemo life, colorful and fun!

Love this face.

Kami is still in the hospital. She is having trouble keeping food in her body, mostly because her body isn't used to having to digest food. Her body will eventually figure things out, until then, she stays where she needs to be, at the awesome pediatric floor of the Hershey Medical Center. She's been there for about a month, which has been hard on her family, but it's a small price to pay for her treatment. And while her family wants her home, she has made a new home for herself and the hospital, making friends with all her nurses and doctors. She's become accustomed to the routine there and continues to make progress.
She goes for walks, inside and outside, plays with her sisters, she decorated her window with Halloween decorations, and watches all the tv she wants! Kami, get the rest you need dear. We love you and will see you soon!
THANK YOU!!!!!!!
Last night's fundraiser was a HUGE success.
Kami has the best friends in the world.


Thursday, October 21, 2010

Took this yesterday!


cat scan

Her daddy pust these up for those of us who were curious. All I have to say is wow!!!!!


Hey everyone, I was able to get a copy of the scans showing Kami's tumor. In the picture I highlighted where the tumor is with a yellow (+). It reaches about 2/3 of the way across her belly. Anyway, some of you were asking what it looked like and these are the best pics I have. Our doctor placed the size of it as larger than a grapefruit. The stomach, pancreas, duodenum (whatever that is) and sections of the small and large intestines are pressed against the left side of her belly.
p.s. Just heard from my mom that the docs looked at her tests and the fetal-protein, the proteins causing the tumor, count in her blood is down by about half!!!!! This is great news!!!!! The chemo is working!!!!!

Monday, October 18, 2010

2nd round of chemo

it's the end of the first day of kami's second round of chemo.
she has been smiling and laughing with us today.

Isaac's Dinner


Come to the dinner on the 25th,
Next Monday between 5pm and 9pm
Eat great food for an even better cause.
Isaac's Deli
235 Pauline Drive
York, PA 17402




round 2


Kami did not get to come home over the weekend like we were hoping. She was, however, taken off her morphine and seems to be doing fine without. She has had a feeding tube put in through her nose, but, at least over the weekend, that was all she was hooked up to. AND, she even ate a little bit!


Today starts round two of chemo. Lets all hope and pray her side effects are not are bad as before.

Thursday, October 14, 2010

recent videos

This one is after her haircut on the 10th.
This one is a few days later.
So stinkin cute.

Isaac's Dinner...rescheduled

The dinner will be the 25th from 5pm-9pm at the South York location. Yeah!

Wednesday, October 13, 2010

Isaac's Dinner

The fundraiser has to be postponed. I will post as soon as I get the official date.

Tuesday, October 12, 2010

Today was a good day.

Kami is feeling alot better today. We painted her toe nails and her finger nails, twice and she played with big sister shannon. Both are a good sign that she is feeling better. We are hoping to be able to take her home in a couple of days before she has to come back for her second round of chemo next week. :)



MOM
Rockin her new do!
Thanks Rudy for the pic I stole from facebook!


Monday, October 11, 2010

I can't stop laughing when I see this pic.
Kami is doing well. She hasn't had a fever for 48 hours, but her blood count is still low. She can't come home until her blood count is higher, but she is doing a little better everyday!
Her hair was coming out all over the place, so they shaved her head. Her bed was getting covered in her own hair. I can imagine Chris and Lindsay were sad and it was probably hard for them. She looks super cute, but somehow seeing her without hair makes her cancer more real. We love you Kam.

Isaac's Fundraiser

The fundraiser might have to be postponed. We have to get a few more things in order and probably won't be ready by the 18th. We'll keep you posted.

Thursday, October 7, 2010

Isaac's fundraiser

The Isaac's in south York will be throwing a fundraiser on October, 18th. Come in for dinner and 25% of you total will be donated to Kami's family. Kami, will not be there, she will be beginning her 2nd round of chemo that day, but I'm sure she will feel all of your love and support!!!!!

updates


I visited Kami today. Here's the lastest.


Her jaw pain seems to be gone! Yeah!


She doesn't seem to be in any pain from the mucusitis, the ulcers in her mouth and throat! Yeah!


She is talking a lot more! Yeah!


She is drinking lots! Yeah!
Her immune system is non-existant.


Still not eating.


She has a bacterial infection in her blood, giving her a fever.


She has developed pneumonia.


She has started to lose her hair.


She is coughing a ton and puking up the mucus in her system, which is good.
So far, everything she is going through is par for the course.


She is exhausted, but she is fighting with all she has got!


Kamma, we love you! Get better soon so we can play patty-cake and eat......anything!!!!




Sunday, October 3, 2010

a few recent updates

I wrote this Monday, October 4th.
Kami was doing really well last Monday, having received her first round of chemo the Saturday before. Everyone was glad to see her able to go home. She was pretty tired and had very little energy. But Thursday morning Chris took her back to hospital because she was complaining of jaw pain, a side effect of the chemo, and she wasn't really eating or drinking well and talking very little.


She was admitted again to the hospital. She was dehydrated so they pumped her full of fluids, which thinned out her blood so she needed a blood transfusion. Her little body wasn't getting enough oxygen from her blood. She got the transfusion last Friday morning. The doctors and nurses watched her very closely for allergic reactions to the new blood.


The doctors gave her morphine for her jaw pain, which helped a little but wasn't enough. Now she is on dilaudid, an even stronger pain killer than morphine. Her jaw isn't in any pain now, but she has "ulcer-like" sores in her mouth that could possibly be through her entire digestive tract, also a side effect of the treatment. This is why she won't eat or drink. It hurts to swallow.

Funny pic from her first stay at the hospital, playing with Bristol's cups

Just a cute picture.

the beginning

This, of course, is Kamdyn.

She is 2.
And she has cancer.

On Monday, September 20th, 2010 Kami, was diagnosed with a rare type of childhood liver cancer.


You can go here http://en.wikipedia.org/wiki/Hepatoblastoma to read more about this type of cancer.


Her parents, Chris and Lindsay, noticed a bump on her belly a few days before the 20th. Through a series of tests on the 20th, doctors were led to believe she had a heptoblastoma, a grapefruit sized tumor on her liver. Chris and Lindsay took her to Hershey Medical Center in Pennsylvania and she was admitted for further testing. Luckily they found that her tumor hasn't spread to other parts of her body.


Yeah! Also, her prognosis is very good, nearly 100%! The docs think that after 4 rounds of chemo, three weeks apart, the tumor should be shrunk enough to safely operate and remove it. She will need 2 more rounds of chemo to blast anything that may have been missed.



Thursday morning, the 23rd, she underwent surgery to implant a port in her chest, that would be used to administer her chemotherapy and other IV drugs, and to biopsy the tumor on her liver so the doctors could figure out which type of chemotherapy regimen would be the best.


Saturday, the 25th, she started chemo.

Friday, October 1, 2010

Kash for Kami

Thank you Tara for the cute flier!
More info to come.